Kia ora and welcome
CJD Support New Zealand (CJDSNZ) is a patient association that is has been set up by people who are personally affected as a support system providing information and assistance for family/whānau members and friends of patients suffering with suspected CJD in New Zealand and other prion diseases and for those at increased risk of developing CJD.
Creutzfeldt-Jakob Disease (CJD) is a rare neurodegenerative brain disease in humans. CJD is the most common human form of a group of diseases that affects humans and animals known as transmissible spongiform encephalopathies (TSE) or prion diseases. While CJD most commonly occurs without known explanation it is unique in that it can also be genetic and is transmissible. CJD is invariably fatal with no known disease-modifying treatment or cure. About 5 to 8 people die every year of CJD in New Zealand.